Tuesday, April 28, 2015

Chronic Illness Awareness Starts NOW!

Today, April 27th, 2015, I was browsing the internet for research into Lupus Awareness Month (May) and World Lupus Day (May 10th.) Since The Purple Moth's community also supports invisible illnesses, autoimmune diseases and all chronic illness, I went in search of awareness dates for these as well so that I may post accordingly in the future...only to find that there was neither a day, nor a week, nor even month to raise awareness about chronic illness!

While Lupus, autoimmune disease, and invisible illness all fall under the category of “chronic,” and despite the fact that chronic conditions are the leading cause of death in the United States to date, there were no dates attributed to the entirety of chronic illness. There was also no awareness ribbon, which autoimmunity, invisible illness and Lupus all have.

Chronic Illness Awareness starts RIGHT HERE, RIGHT NOW!
Here's what you need to know to get on board the campaign:



Q: When will Chronic Illness Awareness Month/Day be set?
A: April is “Chronic Illness Awareness Month,” and “Chronic Illness Awareness Day” will fall annually upon April 27th.

Q: What does the awareness ribbon look like?
A: The ribbon is bright purple (fuchsia) on the outside and bright green (lime) on the inside.

http://www.supportourribbons.com/


Q: Why these colors?
A: Most health-awareness ribbons are either purple or green. Since chronic illnesses cover many of the diseases and conditions represented by ribbons of these colors, both were used to remind the wearer that each, individual condition is equally as important as the collective group of people with chronic ailments. The colors are bright, because neon colors represent being noticed, and chronic illness awareness wasn't acknowledged at all until right now.


Support Chronic Illness Awareness by Getting Involved!

I'm not sitting back and waiting for this to get started; I'm asking for each and every person who cares about their own health or the health of others to do one or more of the following they feel comfortable with:


#1. Submit artwork containing the new awareness ribbon in whatever style you love!

#2. Respond to any of the following questions you feel comfortable answering and submit them to my email:
  • How do you feel this campaign can help people with chronic illness?
  • What would you like to see this campaign accomplish?
  • How do you feel others view people who are chronically ill?
  • Why do you feel there hasn't been a chronic illness awareness campaign up 'til now?
#3. Share your story!
  • What type of condition do you have?
  • What have been your hardest struggles and most enlightening moments?
  • Has your condition enabled you to learn any valuable life lessons?
#4. Share your experience knowing somebody else with a chronic condition, like a friend or family member:
  • How has it effected them?
  • How has it effected you?
  • How do you like to show your support?
  • Do you feel this campaign will help them, and if so, how?
http://birthofathena.com/wp-content/uploads/2013/08/chronicallyfabulous.png

Depending on the length and detail of your submission, I will either use your entire story or parts of your story to make up part of an article about people's testimonies. This is your chance to share your support with the world, and be among the first people to get involved with Chronic Illness Awareness.

An art gallery of people's ribbon art will be posted at the end of May, and will fully credit each illustrator. Submit your ribbon (or other chronic illness art) in any medium you like. Remember, keep it G-rated and do not plagiarize!

So get on board! Help me raise awareness for everybody: your friends, your family and yourself!

Send any submissions to: NikeNicholson@gmail.com

Sunday, April 26, 2015

In celebration of World Lupus Day and Lupus Awareness Month, welcome to The Purple Moth!

http://www.minaslater.com/wp-content/uploads/2011/05/WLDay.jpg

I created The Purple Moth on April 26th, 2015 in order to raise awareness for SLE, invisible and chronic illness, and autoimmune diseases.

This blog marks the start of May, which is Lupus Awareness Month. According to the Lupus Foundation of America, over one and a half million people in this country have this disease, a meager sum compared to the 5 million people worldwide. Since the majority of people diagnosed with Lupus are women of African and Asian descent, you can imagine how many people overseas have this disease. However, it is possible for Lupus to effect any gender at any place and at any time.

Lupus is autoimmune, chronic and invisible. An autoimmune disease manifests when healthy cells are seen as foreign by the immune system. As a response, the immune system becomes compromised, and the host becomes ill. A chronic illness is one which lasts for a long period of time. Since this is true of Lupus, along with the fact that there is treatment, but no known cure, the condition is chronic. And finally, an invisible illness is one in which symptoms are sometimes not visible by others, like aches and pain inside of the body.

Unfortunately, Lupus is a difficult disease to deal with. It can cause chronic pain and discomfort to those who have it, and is one of the most difficult diseases in the world to diagnose due to erratic and sometimes strange symptoms. There are tests that check the elevation of proteins or anti-nuclear antibodies (ANA,) but no single test exists that can prove for disprove the disease. One survey reports that in over 800 patients, over half were misdiagnosed, and it took many of them several years and 4 or more doctors before getting correctly diagnosed.

But May is here, so it's time to get serious and raise awareness! This month is dedicated to firmly insisting that we be treated with respect and dignity so that we can proceed to find treatment, and hopefully someday, a cure!

https://welcome2mylupielife.files.wordpress.com/2013/05/lupus-awareness-month.jpg

Time to don some purple! The purple butterfly is the worldwide symbol for Lupus. The purple ribbon signifies awareness to various causes, and is also used by groups supporting things like domestic violence or other health issues. The butterfly comes from malar rash AKA “butterfly rash,” a rash that spreads across the nose and cheeks, sometimes the chest; a very common Lupus symptom.

Remember, Lupus Awareness Day is May 10th! Throw on that purple shirt and those butterfly earrings!

For more articles, health updates, news, stories, testimonies and a brilliant and beautiful community, follow me on Google + or subscribe to this blog!

If you'd like to be more proactive in the Lupus community, check out lupus.org, an amazing site for everything Lupus!


Keep Faith * Be Smart * Live Awesomely
-Nike

https://justalupieday.files.wordpress.com/2013/06/cropped-justalupieday21.png