In celebration of World Lupus Day and
Lupus Awareness Month, welcome to The Purple Moth!
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I created The Purple Moth on April
26th, 2015 in order to raise awareness for SLE, invisible
and chronic illness, and autoimmune diseases.
This blog marks the start of May, which
is Lupus Awareness Month. According
to the Lupus Foundation of America, over one and a half million
people in this country have this disease, a meager sum compared to
the 5 million people worldwide. Since the majority of people
diagnosed with Lupus are women of African and Asian descent, you can
imagine how many people overseas have this disease. However, it is
possible for Lupus to effect any gender at any place and at any time.
Lupus is autoimmune, chronic and
invisible. An autoimmune
disease manifests when healthy cells are seen as foreign by the
immune system. As a response, the immune system becomes compromised,
and the host becomes ill. A chronic
illness is one which lasts for a long period of time. Since this
is true of Lupus, along with the fact that there is treatment, but no
known cure, the condition is chronic. And finally, an invisible
illness is one in which symptoms are sometimes not visible by
others, like aches and pain inside of the body.
Unfortunately, Lupus is a difficult
disease to deal with. It can cause chronic pain and discomfort to
those who have it, and is one of the most difficult diseases in the
world to diagnose due to erratic and sometimes strange symptoms.
There are tests that check the elevation of proteins or anti-nuclear
antibodies (ANA,) but no single test exists that can prove for
disprove the disease. One
survey reports that in over 800 patients, over half were
misdiagnosed, and it took many of them several years and 4 or more
doctors before getting correctly diagnosed.
But May is here, so it's time to get
serious and raise awareness! This month is dedicated to firmly
insisting that we be treated with respect and dignity so that we can
proceed to find treatment, and hopefully someday, a cure!
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Time to don some purple! The purple
butterfly is the worldwide symbol for Lupus. The purple ribbon
signifies awareness to various causes, and is also used by groups
supporting things like domestic violence or other health issues. The
butterfly comes from malar
rash AKA “butterfly rash,” a rash that spreads across the
nose and cheeks, sometimes the chest; a very common Lupus symptom.
Remember, Lupus Awareness Day is May
10th! Throw on that purple shirt and those butterfly
earrings!
For more articles, health updates,
news, stories, testimonies and a brilliant and beautiful community,
follow me on Google + or subscribe to this blog!
If you'd like to be more proactive in
the Lupus community, check out lupus.org,
an amazing site for everything Lupus!
Keep Faith * Be Smart * Live Awesomely
-Nike
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